Tampabay.com

AUGUST 25, 2010

Every parent's nightmare -- your child has a heart condition

mom_depression.jpgThis is one of those things that as a parent, you don’t really talk about until you’re safely on the other side.

You become superstitious despite all of your recently acquired scientific knowledge and sometimes find yourself knocking on wood despite knowing full well that it won’t really help your 14 year-old son’s heart condition.

He’s healthy, active -- on every sports team at school. There are no cardiac issues in our family. He passed his physical in the fall with flying colors, and has rarely seen the doctor with the exception of a rogue sinus infection or a broken bone. So when he complained one night before Christmas that his heart was racing for no apparent reason, we took notice.

We took him to the ER that night, and by the time he was seen, his pulse was still elevated, but certainly not dangerous. They took an EKG and saw “something” that we should follow up with our pediatrician.

By New Year’s, he was under the care of a pediatric cardiologist and was fitted with a heart monitor.  By Valentine’s Day he was diagnosed with Wolff-Parkinson-White Syndrome, a problem in the electrical system of the heart that creates extra pathways for an impulse.

Sometimes there are symptoms like palpitations, but other times, there are not. It can’t be heard through a stethoscope, and often people are unaware of this condition until its very distinct pattern shows up on an EKG. Depending on where the problem is located in the heart, it can be benign or it can be fatal.

In March, he had a procedure that “burned away” that extra pathway. As it turned out, he had more than one, and it was the deadly variety. Dodged a bullet? We dodged a canon ball.

WPW is not necessarily common, but as word of his condition gotten around, I heard of a dozen of other cases in my circle of friends that knew of healthy, active teens diagnosed with this condition.

This isn’t about having everyone run out and have their children checked for WPW, although if Hillsborough County is still considering EKG screenings in school,  I’m all for it because it absolutely will save young lives.

What it is about is reminding parents that we already have the most important tool in our arsenal as parents against WPW or any health concern.

Listening.

Make sure your children feel comfortable enough to tell you if they don’t feel well, even if they don’t exactly know what that is. If something doesn’t seem right, see a doctor. I’ve learned this lesson firsthand a couple of times and I honestly believe that no one knows your child better than you do, and you are their biggest advocate.

This isn’t to suggest that every sniffle requires a trip to the doctor’s office, but I do think it warrants an ongoing conversation with your children about trusting their instincts and being aware of their bodies and general health.

It certainly is more effective than knocking on wood. And it and can save their life.

~ Tracey Henry, the Suburban Diva

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THE AUTHORS

Sharon Kennedy Wynne has sunscreen in her blood. She may have been born in Buffalo but she got here as fast as she could, in time for kindergarten. She grew up in St. Petersburg, graduated from the University of Florida journalism school, and even got married at Sunken Gardens. She's one of the few adults we know who actually loves taking her kids to the beach. She has two sons and with 10 years of parenting under her belt, she's starting to feel a little less out of her league. She comes from a large family and loves to debate, so brace yourself when the hot topics come up.

E-mail Sharon Kennedy Wynne:
wynne@tampabay.com

SP_255665_CROS_KATE.jpgAfter six long years of trying to have a baby, Kate Brassfield was finally able to have one. And then, two minutes later, another one. Suddenly the lady who had never been around babies before was juggling two! Just as Kate felt she was getting pretty good with babies, the girls became toddlers, and now Kate is back to Square One, learning about the care and feeding of these strange, wonderful creatures. She spends her days working part-time from home and trying to keep up with the Twinosaurus Wrecks.

E-mail Kate Brassfield:
katedaphne17@gmail.com

Freelance writer Courtney Cairns Pastor wasn’t so sure about having kids and how she would balance child-rearing with her journalism career. It turned out that her journalism training went to good use. As the mom to a funny, active toddler, she learned to handle him like she did her sources. Never ask yes or no questions (the answer will always be no), get him to be specific (are you crying because you’re wet or your tooth hurts?) and be prepared for anything because no two days are the same. When she’s not playing trucks, Courtney crams for her book club, trains for races and occasionally bursts into showtunes. E-mail her at courtneyblogs@gmail.com.

Suzannah DiMarzio has it bad for the Mouse. Although she grew up outside of Boston, she took her degree in tourism management down to Orlando just to work at Disney and the travel industry. Of course, when she married her high school sweetheart, the reception was at Disney. She’s now a seasoned stay-at-home mom to two tweens and a toddler – and yes, that is as crazy as it sounds. Suzannah has her own blog, ZannaLand.com , and she's a member of the Walt Disney World Moms Panel in addition to being addicted to Twitter, iced coffee, and watching way too much Yo, Gabba Gabba.

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