Friday, February 23, 2018
News Roundup

My parents have Alzheimer's. This is my life now.

In 2010, Elizabeth Wolf, then 30, was living in Vermont, working for a nonprofit. But after several disturbing phone calls from and about her parents, Louis and Nancy Brood, Wolf moved back into the split-level in Mt. Laurel, New Jersey, where she and her siblings had grown up, with her now husband, Casey Wolf. She expected to arrange caregiving help for her parents, then return to Vermont. Five years later, she is still taking care of her 81-year-old father and 65-year-old mother, both with dementia. This is her story:

My parents called me one day in March and started singing Happy Birthday. It was unsettling. My birthday is in May.

My uncle called, too. He and my father had owned an upholstery shop in Philadelphia for 50 years, and it was really bothering him that my dad couldn't do simple math anymore.

I don't remember all the doctors' appointments that led to Dad seeing a neurologist, but I do remember the appointment where they subjected him to the mini-mental test. He came away from that examination with an Alzheimer's diagnosis.

We were very concerned about my mother, too. She was asking us the same questions over and over. I said I'd talk to the teacher whose classroom she worked in as an aide.

The teacher said, "Your mother is basically not functioning. She just sits at a table in the back of the classroom and stares out the window."

It had been going on for a long time, and we had all been so focused on my dad, we had missed it. We ended up taking her to the same neurologist, and she got an Alzheimer's diagnosis, too.

I told Casey, "We're going to come back for two months." It became apparent very soon that we would need to stay longer.

The doctors told me that people with Alzheimer's have an average life span, between diagnosis and death, of five to seven years. So I knew we're in this for the long haul, whatever that looks like.

Now, every morning, I wake up around 6 or 6:30. I'll bring Dad his medicine. I take Mom to the bathroom. I have to take her every couple of hours; otherwise we have what happened this morning, when there's not only a major accident, but the mess ends up everywhere, and I have to get her in the bath.

I prepare their breakfast. She takes medicine for diabetes, hypothyroidism, high blood pressure, and she's on seizure medication and two antipsychotics because she has hallucinations. She stopped swallowing pills willingly a few years ago; we were having all-out wars. Now we hide them in chunks of banana.

My dad goes to a day program for adults with Alzheimer's and dementia. Five days a week, he gets picked up at 8:40 and comes back between 1 and 1:30. I'm always looking for more activities to do with him. I found a local voice teacher, and once a week she plays the piano and they sing together, old songs he has in his deep memory recesses. All the Way. Some Enchanted Evening.

My mom doesn't have much of an attention span for activities anymore. A lot of what we do all day is wander and sit and stare out the window.

At night, we have a motion sensor so that any time their bedroom door opens — if my mom has to go to the bathroom, she'll wander into the hallway — a receptor in our room bings. It goes off maybe six times a night, on average. One night recently my dad was so confused, up so many times, and I was exhausted and full of frustration and anger and overwhelming grief. I just went in there and cried in his arms, begging him, "Please, go back to sleep." He didn't understand, but he was holding me and crying, too, and saying, "I'm so sorry. I'll do better. I'll do better."

I don't know how to describe that feeling, where you just don't feel like you can go on anymore. And I know I have a lot of things on my side relative to other people in this situation. A supportive husband. Paid help.

But most of the caregivers aren't able to handle my mom in the bathroom or bathe her, so often they're assisting me. And when I do have help, I'm running around trying to do the other thousand things that need to happen to maintain a household. I also work part time from home.

Most of my "me time" is spent going to the gym; I see a therapist and get acupuncture a couple of times a month, too. These are the things I do to stay alive.

More than anything, the grief or loss I feel is in the form of loneliness. The isolation. I don't know how to relate to people my age. Once in a while I let myself think about what I've given up. Casey and I decided not to have children, but I feel like a mother to my parents. I value the incredible intimacy I get to share with them. When I was a teenager, my mother was pretty critical; she ignored me for days at a time. I think she was overwhelmed by motherhood.

Now, this role that we share, it's changed the dynamic, the history of our relationship. However many years down the line, looking back, I'll think of the moments of tenderness I shared with her, every single day.

There was a point in 2013 when we had plans to move my parents into a facility. We did everything we could — we brought couches and furniture from their bedroom — to make the place feel homelike. But it wasn't home. For my dad, it lasted three days. He started having panic attacks, to the point where he was throwing up.

He was still with it enough to call us. I remember getting a message from him, weeping. "It's Daddy. Please, me and Mom want to come home."

Everybody, including his doctor, said, "You have to leave him; you have to let him adjust." I couldn't do it.

They've been here 40 years. All my dad ever wanted was this home. Who am I, if I take my dad from his home?

Elizabeth Wolf, who volunteers with the Alzheimer's Association, writes about the experience at


One killed, two injured as boats collide on Little Manatee River

RUSKIN — Two boats collided on the Little Manatee River Friday morning, killing one person and injuring two others, according to Hillsborough County Fire Rescue.The two who were injured are being treated at a hospital.The identities of the three were...
Updated: 6 minutes ago

Edward Peachey demands severance from CareerSource before stepping down

Edward Peachey, the leader of Pinellas and Hillsborough career centers under multiple investigations over the way they report job placement figures, says he has no intention of stepping down unless he is paid a severance.In a letter from his attorney...
Updated: 9 minutes ago
Live Coverage: Republican leaders announce school safety proposals

Live Coverage: Republican leaders announce school safety proposals

The Florida Senate’s own polling shows strong support for an assault weapons ban among Florida residents. But Republicans say their proposals won’t include that. What will it include?Follow live.[ TEXT OF SPEECH: Gov. Scott proposes $450 ...
Updated: 13 minutes ago
BB&T cites ‘technical issue’ in outage affecting customers

BB&T cites ‘technical issue’ in outage affecting customers

Millions of BB&T customers were unable to access their accounts after a service outage which the bank blames on an equipment malfunction. The Winston-Salem, North Carolina-based bank posted a statement on its Twitter page saying the problem persiste...
Updated: 23 minutes ago
She’s taught at the Parkland high school for 14 years. Can she go back?

She’s taught at the Parkland high school for 14 years. Can she go back?

She was afraid of what it would feel like, but she needed to know, so Melissa Falkowski pulled into the faculty parking lot. She took a deep breath in through her nose and climbed out of her car. She was back, in front of Marjory Stoneman Douglas Hig...
Updated: 29 minutes ago
Top 5 at noon: Gov. Scott’s sweeping school safety changes; follow the Rays’ spring openers live; and more

Top 5 at noon: Gov. Scott’s sweeping school safety changes; follow the Rays’ spring openers live; and more

Here are the latest headlines and updates on COVERAGE: RICK SCOTT, REPUBLICAN LEADERS ANNOUNCE SCHOOL SAFETY PROPOSALSFlorida Gov. Rick Scott announced sweeping school safety changes as part of his response to the Feb. 14 mass shoo...
Updated: 1 hour ago
Tampa Downtown Partnership gets initial city okay to expand north

Tampa Downtown Partnership gets initial city okay to expand north

TAMPA — The Downtowner may be heading to Tampa Heights — but not until Oct. 1.That’s because the nonprofit Tampa Downtown Partnership this week won initial City Council approval to expand into Tampa Heights."Tampa Heights is becoming an important gat...
Updated: 1 hour ago
Realtors are ‘every 10 feet’ in Florida but more want in the business

Realtors are ‘every 10 feet’ in Florida but more want in the business

ST. PETERSBURG — Tired of working as a yacht captain, Pancho Jiminez decided to get into real estate even though he knows it’s a highly competitive field in Florida."Realtors are every 10 feet around here," he says.Nonetheless, Jiminez is among 30 st...
Updated: 1 hour ago
Winn-Dixie sells 8 stores after report says owner could close 200 locations

Winn-Dixie sells 8 stores after report says owner could close 200 locations

A week after Bloomberg reported that Southeastern Grocers — the Jacksonville retailer that owns Winn-Dixie and other chains — could be closing up to 200 stores, the company announced it was selling off eight of its Louisiana locations.Texas’ Brooksh...
Updated: 2 hours ago

School District demands students leave backpacks at home due to threats

Middle school and high school students across Manatee County have been asked to leave their backpacks at home Friday in response to "an excessive number of threats."The Manatee County School District announced its decision through telephone calls and...
Updated: 3 hours ago