Clearwater 3-year-old with MLD gets some new wheels

Published Oct. 4, 2013

Savannah Hurst, 3, of Clearwater settles into her new Axiom Endeavor 2 Pushchair on Thursday with help, from left, from her father, Joe Hurst; Madeline Robinson and Susanne Jackson of Wheelchairs 4 Kids, which donated the chair when she outgrew her stroller; and her mother, Renee Hurst. Savannah has metachromatic leukodystrophy, or MLD, a genetic disorder that affects nerves, muscles and motor skills. Savannah's parents didn't expect her to live long after her diagnosis, but she is thriving. Wheelchairs 4 Kids plans a Nov. 2 fundraiser at Ruth Eckerd Hall to raise money for wheelchairs. Visit